What is EDS? It is a hereditary connective tissue disorder with the following symptoms: joint hypermobility, limbs that dislocate, constant pain and fatigue. “Fortunately”, EDS is a rare syndrome. 1 to 4 in 20,000 people suffer from some type of EDS - hypermobile Ehlers-Danlos syndrome (hEDS) being the most common.
Crown caps for research
Rarity, however, also means that little research is being conducted into the treatment. For this reason, Brouwland is entering into a collaboration with crown cap supplier Astir Vitogiannis and Zebrapad vzw. Zebrapad collects used crown caps at various collection points throughout Belgium. Recycling these caps generates money. Zebrapad donates the full amount to Ghent University Hospital for their research into Ehlers-Danlos.